Publicly Available Datasets for GeriOnc Research

Database	Abbreviations	Research Papers/Abstracts with Link (CARG Member Investigator)	CARG Investigators	Comments
Surveillance, Epidemiology, and End Results	SEER	Predicting future cancer incidence by age and gender (VanderWalde)	Rachel Freedman Noam VanderWalde Viteri Malone Eva Culakova Anita Kumar	Programming challenge
Surveillance, Epidemiology, and End Results-Medicare	SEER-Medicare	The characteristics, treatment patterns, and outcomes of older adults aged 80 and over with multiple myeloma (Wildes) Measuring cardiopulmonary complications of carfilzomib treatment and associated risk factors using the SEER-Medicare database (Wildes) Adherence to Lenalidomide in Older Adults With Newly Diagnosed Multiple Myeloma (Wildes) Cost differential associated with hospice use among older patients with multiple myeloma (Wildes) Depression and Health Care Utilization at End of Life Among Older Adults With Advanced Non-Small-Cell Lung Cancer (McDermott) Patterns of care in older patients with squamous cell carcinoma of the head and neck: a surveillance, epidemiology, and end results-medicare analysis (VanderWalde) Effectiveness of chemoradiation for head and neck cancer in an older patient population (VanderWalde) Definitive Pelvic Radiotherapy and Survival of Patients With Newly Diagnosed Metastatic Anal Cancer (VanderWalde) Nurse Practitioners and Physician Assistants: An Underestimated Workforce for Older Adults with Cancer (Coombs) Effectiveness of adjuvant FOLFOX vs 5FU/LV in adults over age 65 with stage II and III colon cancer using a novel hybrid approach (Lund) Changes in chronic medication adherence in older adults with cancer versus matched cancer-free cohorts (Lund) Association between Concomitant Use of Hydrochlorothiazide and Adverse Chemotherapy-Related Events among Older Women with Breast Cancer Treated with Cyclophosphamide (Lund) Acute pancreatitis as an early marker of pancreatic cancer and cancer stage, treatment, and prognosis (Lund) Renin-Angiotensin-Aldosterone System-based Antihypertensive Agents and the Risk of Colorectal Cancer Among Medicare Beneficiaries (Lund) The concomitant use of tyrosine kinase inhibitors and proton pump inhibitors: Prevalence, predictors, and impact on survival and discontinuation of therapy in older adults with cancer (Sharma)	Tanya Wildes Xiatao Rony Zhang Amy Davidoff Cara McDermott Rachel Freedman Noam VanderWalde Viteri Malone Niraj Gusani Lorinda Coombs Jennifer Lund Meghan Karuturi Manvi Sharma	No EHR data, lab values, limited information on metastasis
Surveillance, Epidemiology, and End Results-Medicare-Minimum Data Set	SEER-Medicare-MDS		Huiwen Xu
Surveillance, Epidemiology, and End Results-Medicare Health Outcomes Survey	SEER-MHOS	Development of a Medicare Health Outcomes Survey Deficit-Accumulation Frailty Index and Its Application to Older Patients With Newly Diagnosed Multiple Myeloma (Wildes) Falls in older adults with multiple myeloma (Wildes) Association of falls with health-related quality of life (HRQOL) in older cancer survivors: A population based study (Mohile) Impact of bladder cancer on health related quality of life in 1,476 older Americans: a cross-sectional study (Mohile)	Anita Kumar Tanya Wildes Supriya Mohile Amy Davidoff Imran Ali	No cancer treatment data
Surveillance, Epidemiology, and End Results-Consumer Assessment of Healthcare Providers and Systems	SEER-CAHPS		Amy Davidoff
Medicare Current Beneficiary Survey	MCBS		Huiwen Xu Amy Davidoff
Health and Retirement Study	HRS		Huiwen Xu Amy Davidoff
National Cancer Database	NCDB	Disparities in Perioperative Radiation Therapy Use in Elderly Patients With Soft-Tissue Sarcoma (VanderWalde)	Rachel Freedman Noam VanderWalde Niraj Gusani
National Health Interview Survey	NHIS		Rachel Freedman
Nationwide Inpatient Sample	NIS		Anita Kumar	Contains inpatient data only
State Inpatient Databases (with NIS)	SID	Use of Inpatient Palliative Care Services in Patients With Advanced Cancer Receiving Critical Care Therapies (Loh) Predictors of the Use of Specific Critical Care Therapies in Patients With Metastatic Cancer (Loh) Predictors of In-Hospital Mortality in Patients With Metastatic Cancer Receiving Specific Critical Care Therapies (Loh)	Melissa Loh
National Health and Nutrition Examination Survey	NHANES		Xiaotao Rony Zhang
National Health and Aging Trends Study	NHATS		Rachelle Brick Huiwen Xu	Specific diagnostic information, treatment, and dates associated with treatment and surgery require additional cost or approvals
Veterans Affairs	VA		Clark DuMontier	Nationally integrated database with good follow-up
Clinicaltrialsgov		Decreasing incidence of upper age restriction enrollment criteria among cancer clinical trials(VanderWalde) Factors Associated With Age Disparities Among Cancer Clinical Trial Participants (VanderWalde)	Noam VanderWalde
Women's Health Initiative	WHI	Physical Functioning among Women 80 Years of Age and Older With and Without a Cancer History (Klepin)	Heidi Klepin
Health, Aging and Body Composition Study	Health ABC	Physical performance and subsequent disability and survival in older adults with malignancy: results from the health, aging and body composition study (Klepin) Association of total adiposity and computed tomographic measures of regional adiposity with incident cancer risk: a prospective population-based study of older adults (Klepin) Chronic inflammation and risk of colorectal and other obesity-related cancers: The health, aging and body composition study (Klepin) Adherence to Cancer Prevention Guidelines among Older White and Black Adults in the Health ABC Study (Klepin) Trajectories in muscular strength and physical function among men with and without prostate cancer in the health aging and body composition study (Klepin) Assessment of Sarcopenia Measures, Survival, and Disability in Older Adults Before and After Diagnosis With Cancer (Klepin/Williams)	Heidi Klepin Grant Williams	A longitudinal study and analyses can be quite complicated and requires NIA approval
National Social Life, Health, and Aging Project	NSHAP	Social Relationships and Functional Impairment in Aging Cancer Survivors: A Longitudinal Social Network Study (Guida)	Jennifer Guida	Has limited data on cancer survivors and a relatively small sample size. Very rich interms of aging-related data though
Texas Cancer Registry linked with Medicare	TCR-Medicare		Manvi Sharma
Open Payments data linked with CMS Provider Utilization - Part D Prescriber data		Concordance Between Electronic Health Record Data and Medicare Part D Claims Data for Oral Anticancer Drug Use (Sharma) Association between industry payments and prescribing costly medications: an observational study using open payments and medicare part D data (Sharma)	Manvi Sharma
Medical Expenditure Panel Survey	MEPS	Comparative Performance of Diagnosis-based and Prescription-based Comorbidity Scores to Predict Health-related Quality of Life (Sharma)	Manvi Sharma

Last Updated on December 7, 2020